“As the weeks turned to months and now years, I have had days when I have wondered if I will ever be the person I was before - and it makes me feel depressed. My main frustration is not being able to go for long walks, climb hills, or travel long distances because of the fatigue. I also find my memory and ability to recall wards has become really bad.” Susan, 63 is a health policy consultant and considered herself fit and healthy before catching COVID-19 in April 2020. At that time, she was an avid hill walker and regularly practiced yoga. The irony was that her husband also caught COVID-19 at around the same time, but was over his illness after only a week. Susan, however, was not so fortunate – she soon developed chronic fatigue, headaches, high temperature and muscle aches, with a nasty cough developing two weeks later. She remained Ill in bed for 3 weeks, only venturing out to get her pulse and oxygen levels checked at a local drive-through test centre. Two months after having contracted COVID-19, Susan was still coping with headaches and brain fog, which eventually cleared up, only to be replaced by breathlessness and fatigue again. “In the first few months I was frustrated that I couldn’t even walk to the local shops, having always been a very active and independent person. My husband was very supportive, but at first he struggled to understand why I wasn’t getting better, particularly as he’d managed to shake off the virus so quickly. Loss of appetite and interest in things because of fatigue worried me, but I was very hopeful that the symptoms would soon clear up”. As well as having this sense of optimism, Susan was feeling that things could have been so much worse. “ Given the number of people who were dying from COVID-19 in 2020, I considered myself extremely lucky. I was very aware that as we were all in lockdown so everyone’s lives were being restricted, not just mine. Also that this had happened to me at a time of my life when I could afford to slow down a bit without having major financial or family worries. If I’d been mid-career, with a physically demanding role, I am sure I would have felt much more frustrated and stressed.” Susan began following the LongCovidSupport Facebook page, which made her aware she wasn’t alone in how she was feeling. “In the first half of 2020, the Facebook page seemed to be the only form of support out there. A coordinated service for addressing my symptoms didn’t become available in my area until spring 2021. It was reassuring to find there were many others in the same situation as me and that what I had was real. It also became a really useful source of practical advice at a time when there was very little available”. “I chatted to many people on there, who like me had had COVID-19, but weren’t admitted to hospital. We had all started trying to build up exercise after the initial infection went and then ended up exhausted and back in bed. For me, that was the trigger to realise something was really not right.” Between August and October 2020, Susan was referred for heart, lung and blood tests, which led to a diagnosis of ‘post-viral chronic fatigue’ – a classic sign of Long COVID Condition. “My GP has been very supportive, both before and after the diagnosis. You have to remember that no-one really had a clue what Long COVID was at that time (and we still don’t fully understand it) so it has been a challenging time for clinicians as well. However, my GP really listened to me and through the process we’ve both learnt a lot about Long COVID ”. Two years on from catching COVID-19, Susan is still suffering from fatigue, but has adapted and come to terms with the reality of her condition. “I am often tired by early evening so have to plan my day accordingly. I find yoga – which combines movement, breathing and mindfulness – is really helpful. My life has really slowed down, but in some ways I find it quite beneficial. I notice and appreciate so much more around me – especially nature and the seasons. So as one door closes, another one opens”. “Long COVID can be life-altering, as I have found, so I don’t understand why people wouldn’t want to get a COVID-19 vaccination to protect their own health and that of the loved ones around them. No-one can predict, as yet, who will go on to develop Long COVID from a COVID-19 infection – even a mild bout of it; it is a condition that can affect all ages and there are many sufferers out there – like me – who were previously healthy, with no underlying conditions”. “I’d urge everyone to get vaccinated, because people who end up having to have hospital treatment because of COVID-19 infection are also potentially worsening the already significant backlog in treatments available to patients with other serious conditions”.